Main content

Alert message

senseabilities masthead

Una publicación sobre discapacidades visuales, y sordera y ceguera, para familias y profesionales.

Excerpt from The Vision Center at Children's Hospital Los Angeles

Abstract: this article describes a survey to collect information about children who have been diagnosed with optic nerve Hypoplasia/septo-optic dysplasia.

Key Words: blind, visual impairment, Optic Nerve Hypoplasia, Septo-Optic Dysplasia, Children’s Hospital Los Angeles, survey, Mark Borchert, M.D., The Vision Center at Children’s Hospital Los Angeles.

At Childrens Hospital Los Angeles (CHLA), a national survey is being performed to examine the distribution of optic nerve hypoplasia/septo-optic dysplasia (ONH/SOD) cases across the United States. Mark Borchert, M.D., is conducting this research with Pamela Garcia-Filion, MPH, who is a Ph.D. student in Epidemiology at the University of Southern California.

The researchers are asking for your assistance in providing this survey to families that have a child with ONH/SOD. The survey takes less than 15 minutes to complete and participation is voluntary. The Institutional Review Board at CHLA has approved the researchers to collect information from the parents about the:

  1. season and year their child with ONH was born,
  2. census tract for where the mother lived 3 months before conception,
  3. census tract for where the mother lived during the 1st trimester, and
  4. census tract for where the mother lived during the 2nd trimester of the pregnancy.

The survey can be submitted to us by mail or it can be completed over the Internet at any one of the following websites:

If you do not want to complete the survey over the Internet, then you can complete a paper version of the survey provided and return it to us by mail. Our address is:

Attn: Pamela Garcia-Filion, MPH
Childrens Hospital Los Angeles
4650 Sunset Blvd., MS #88
Los Angeles, CA 90027

Information collected from parents is protected under a Certificate of Confidentiality issued by the National Institute for Health and the data will be entered into a confidential database at CHLA. If you have any questions about this survey, please contact the Children’s Hospital Los Angeles at (323) 361-4510.