Continuing with the TX SenseAbilities focus on the Family Engagement Report, this article shares the first three state priorities intended to drive the work of providers as they partner with families in navigating supports and systems. For more details on the Family Engagement Report, please see the entire 2023 Special Issue of TX SenseAbilities on Family Engagement: Lessons Learned From Our Families published in August 2023.
The author shares her family’s decision to give their son with CHARGE Syndrome early access to sign language. She also describes how they followed his lead as he gained confidence in making his own communication mode preferences.
A lawyer who is blind shares her keynote speech that was given at the National Parents of Blind Children 2021 Conference. She reflects on wisdom gained growing up as a Palestinian refugee, going to college, building her own community, and being a parent of children with disabilities while working for a large federal agency. We invite the reader to consider the Family Engagement Report priorities while learning from the presenter’s personal perspective and her advice for other families.
First printed in Accent West Magazine in January 2023 (reprinted with permission), this article describes the journey of a young man who loses his vision but continues to focus his life on serving others.
Being part of a family engagement network is a powerful way to learn while being encouraged, mentored, and inspired. We are fortunate to have many family organizations active at both the state and national levels on issues important to our communities. Following are the state and national organizations of families with children and young adults who are blind, low vision, and deafblind.