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Books on display at the Low Vision Conference: Supporting students with albinism

  • Beyond the Pale: Folklore, Family and the Mystery of our Hidden Genes by Emily Urquhart, Harper Ave Publisher 2015
    The author is a journalist, folklore scholar and first-time parent of a child with a disability. Urquhart embarks on a three-year journey across North America and Africa to discover how we explain human differences, not through scientific facts or statistics but through a system of cultural beliefs.

  • Akata Witch by Nneda Okorafor, Viking Press 2011
    The author’s fictional character, 12-year-old Sunny Nwazue, is an American-born child with albinism. Her parents are Nigerian and the story begins with them moving back to Nigeria. She learns that she has undiscovered magical powers and meets similarly gifted friends who work together to catch a serial killer.

  • Living with Albinism by Elaine Landau (First Books series), Collins Publishing 1998
    This chapter book directed to young readers (grades 2-5) gives a description of albinism and covers relevant topics such as health concerns (e.g., sun protection) and responses to commonly asked questions about the inherited condition.

  • But Mommy It’s Not Fair by Sherria Elliott, Elliott Publishing Inc. 2011
    Inspired by the life of her daughter, “Heaven,” this series follows the life of a young girl with albinism who struggles to accept herself and understand why her appearance differs from her friends and family.

  • A Blind Guide to Stinkville by Beth Vrabel, Sky Pony Press 2015
    This fictional account of 12-year-old Alice combines humor and a real-world view of growing up with albinism. Alice has made a cross country move with her family and settled in a South Carolina town nicknamed Stinkville. In a lively first person voice, she figures out how to navigate her new community as someone who is legally blind, learns about a writing contest at the public library that helps her get to know the community and make friends along the way.

  • Albino Animals by Marie Racanelli, Powerkids Press 2010
    This short book (24 pp) directed to young readers features engaging photographs and brief explanations of the challenges faced by animals with albinism.

  • Albino Animals by Kelly Milner Halls, Darby Creek Publishing 2004
    This slim book combines vivid photography with facts and stories on a wide range of animals with albinism.

  • Unique by Arlene Gerrity, Post Publication 2013
    This is the story of a robin born with albinism, who matures and succeeds in life by learning to handle, in a positive manner, her “unique” genetic condition. She triumphs by going over, under, around and through physical challenges in her path.

  • Breaking the Boundaries of Impairment: A Life Journey with Low Vision by Bruce Barton, 2017
    The author’s adventuring spirit has led him to such adrenaline pumping experiences as putting radio collars on black bears for science, snorkeling with manta rays and rappelling into caves. His book includes advice and encouragement to others with low vision in succeeding at school, work and the social scene as well as outdoor adventures.

  • The Edge of Normal by Hanah Schank (available for download) 2015
    This essay, filled with both heartbreak and joy, tells one mother’s story of finding her role as a parent of a child with albinism and navigating the spectrum of ability and disability.

  • Twice Exceptional by Hanah Schank (available for download) 2015
    A mother describes her battle with the New York education system to gain appropriate services for her five-year-old daughter who has albinism and is legally blind.

Books published by NOAH ((National Organization of Albinism and Hypopigmentation) from NOAH website albinism.org/books/))

  • Raising a Child with Albinism: A Guide to the Early Years
    This helpful guide for parents presents information from 20 contributors on managing the challenges in the early years. Topics covered include impact on child development, early intervention services and guidance for social concerns.

  • Raising a Child with Albinism: A Guide to the School Years
    This helpful guide for parents explores topics relevant to entering school such as planning for the IEP meeting, participating in PE and navigating the social scene.