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Sara:
We asked Cassie's family and her educational team to answer questions about Cassie's visual behaviors. Cassie's mother, who answered the questions, was familiar with the characteristics of CVI. She gave us one set of answers and Cassie's educational team gave us another. Most of the time those answers agreed. We will consider both sets when recording our information. We'll skip over questions that don't contain information for us to record on our data sheet unless they seem to bring up something notable regarding vision. We recorded this information on the data sheet called "Interview Information." You can look at the parent interview guide on page 41 (Appendix 4.A) in Roman's book to help you interpret what CVI characteristics the questions are getting at.

Question 1 asks what they do to get Cassie interested in a toy or object. Her mother said music or lights catch her interest, and if there are none of those, she holds it in front of Cassie's face. School staff said they put it "in her field." We recorded those responses in the rows on the Interview sheet called "Light," and "Field Preferences."

Lynne:
Question 2 asks, "how you would know Cassie sees something when you show it to her?". Her mother said she grabs or reaches for it. School staff said that Cassie brings it to her face or moves it. They also said she looks out the window of the van when moving for the whole trip. We marked these items in "Need for Movement," Complexity," and "Distance Viewing."

Question 3 asks if Cassie has a favorite side or head position. Her mom said sometimes she tilts her head up. School staff agreed with this, and specified she does this when looking at faces. Also they said she walked with her eyelids partially closed and wondered if she was blocking some of the visual field. We marked this in the row called "Field Preferences."

Sara:
Question 4 asks if Cassie usually finds objects by seeing with her eyes or with her hands (meaning, feeling for them). Her mother said half and half, the school said, "Looking then touching." We marked that in the row called "Visually Guided Reach."

Question 6 asks where someone would hold something for Cassie to look at. Her mom said 1 ½ feet away and directly in front of her eyes, and that she wiggles it. The school staff said right in front-central. We recorded that information in the rows for "Distance viewing," "Need for Movement," and Field Preferences."

Lynne:
Question 8 asks what doctors have said about Cassie's eyes. Her mom said she has a little astigmatism in one eye, but that they are fine other than that. If we didn't already have the CVI diagnosis, the gap between how Cassie presents visually and that of another person with astigmatism in one eye would be a signal that the visual impairment must be in the brain.

Question 9 asks about when Cassie likes to look at things. The answer again identifies light emitting objects and moving objects that vibrate or wiggle. We marked this data in the rows "Need for movement" and "Light."

Sara:
Question 10 asks about Cassie's favorite color of things to look at. Neither thought there was a preference. We marked that data in the row for "Color."

Question 11 asks about what Cassie does near shiny and mirrored objects. Her mother said she is curious and if it's very shiny she will squint. The school said she is drawn to things that reflect a lot of light. We marked this in the row called "Light."

Question 12 asks about Cassie's response to lights or ceiling fans, and everyone said she likes to turn lights off and on. We marked that in "Light."

Lynne:
Question 14 asks about whether Cassie notices things that move or things that don't move first. Her mom said she notices things that move first. Her school said both because Cassie moves a lot. We marked this information in the row "Need for Movement."

Number 15 asks about Cassie's head positioning while she is looking at something. Her mom said she might slightly raise her head up. We marked this in "Field Preferences."

Number 16 asks again about favorite colors. Both school and home said they had not seen this. We marked this in "Color."

Sara:
Question 17 asks about Cassie noticing things in new places more, or in familiar places like home. Her mom said more in new places, but the school staff said she moves all the time in a new environment, and pays no attention to detail, which may seem like greater alertness depending on how the question is interpreted. We marked this in "Need for Movement," and in "Visual Novelty."

Question 18 asks about how Cassie holds her head when reaching toward something. Her mom said that she holds her head straight toward the object but sometimes turns away. We marked this one in the row called "Visually Guided Reach."

Question 19 asks how Cassie responds when given unfamiliar items to look at. Her mom said she shakes them and turns them around AND THEN looks at them. We marked that one in the rows "Need for Movement," "Visual Latency," and "Visual Novelty."

Lynne:
Question 22 asks what Cassie does when she has many items in front of her to look at. Her mom said she just takes one at a time and looks at them individually. School said they noticed she looks less. We marked this in "Complexity," for both of those, because "looking less" when there is a cluttered array is definitely a notable response, and even taking one item at a time could be a way to deal with the cluttered array, depending on how or where she holds the item.

Question 23 asks about Cassie looking at faces. Her mom said she looks at familiar people who she loves and trusts. School staff said she looks at everyone but doesn't seem to differentiate people by their face. We also marked that in "Complexity."

Question 25 asks about the visual characteristics of Cassie's favorite toys. Her mom said she likes things that light up. We marked that in the row called "Light."