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Summer 2005 Table of Contents
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Offering Information and a Crucial Link
Announcement from the Cornelia de Lange Syndrome Foundation

Abstract: Announcement that comprehensive information packet and newsletter about CdLS is available and information on how to access information.

Key Words: Cornelia de Lange Syndrome, CdLS, American Legion Child Welfare Foundation, blind

Doctors, therapists, and educators shape our lives in countless ways. At the CdLS Foundation we continue to reach out to professionals providing them with vital information about CdLS. We also provide a much-needed link between families and knowledgeable professionals.

Thanks to the generosity of the American Legion Child Welfare Foundation we are able to mail a comprehensive information packet about CdLS as well as a year of issues of our newsletter “Reaching Out” to any interested professional. Many professionals who initially contact the Foundation to learn more about the syndrome become valuable resources for the families in their area. With your help we would like to continue to educate professionals and build our nationwide network of support.

If you know of a caring professional who would benefit from more information about CdLS or if you would like to recommend a professional that you work with as a resource for others, please reply to this email with the following information: name of professional, her or his area of expertise, address, email, phone number, her or his preference for contact (email, phone, or mail), and your name. (Optional: number and names of people with CdLS this professional has served.)

If you are a doctor, therapist, or educator who does not currently receive Reaching Out, please reply to this email with the following information: your name, area of expertise, address, email, phone number, preference for contact (email, phone, or mail). (Optional: number and names of people with CdLS you have served.)

Thank you for helping us find support for all who request it.

Kalia Kellogg, Director of Communications
Cornelia de Lange Syndrome Foundation
302 West Main Street, #100
Avon, CT 06001
P: (860) 676-8166
F: (860) 676-8337
<http://www.CdLSusa.org>


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