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Spring 2001 Table of Contents
Versión Español de este artículo (Spanish Version)

Attention: Individuals and Families with Usher Syndrome

Drs. Judith Willner and Seth Ness, with Mt. Sinai Hospital in New York, are conducting a study to find the genes responsible for Usher Syndrome (hearing loss and retinitis pigmentosa) in Ashkenazi Jews. If you or a member of your family are an Ashkenazi Jew or of Ashkenazic heritage and have Usher Syndrome, or both hearing loss and vision loss that has no other known cause, your family may be eligible to participate. The possible medical advances and greater understanding of Usher Syndrome that may result if causative genes are found are the primary benefits of participation. Involvement may be as simple as a phone call and giving blood locally or may involve spending a few hours at Mount Sinai Hospital in New York for vision and hearing tests at no cost to you. Call Drs. Ness or Willner at (212) 241-6947, Dept. of Human Genetics, Box 1497, Mount Sinai School of Medicine, 1 Gustave L. Levy Place, NY, NY 10029, e-mail to nesss01@doc.mssm.edu

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Last Revision: September 1, 2003