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Versión Español de este artículo (Spanish Version)

Welcome to Our-Kids <>

Reprinted with permission

Our-Kids is a "Family" of parents, caregivers and others who are working with children with physical and/or mental disabilities and delays. We call the list "Our-Kids". While it isn't exactly descriptive, it avoids the pitfalls of labeling our kids anything but what they most certainly are: The wonderful little people in our lives.

The Our-Kids list consists of over 800 people representing children of varying diagnoses; everything from indefinite developmental delays and sensory integration problems, to cerebral palsy, to rare genetic disorders. Over 35 countries are represented on the list now.

Here we can discuss our children's accomplishments and defeats, knowing that the audience includes others who know what we are going through. We can also get some idea of how others address specific problems/concerns with feeding, learning, schools, medical resources, techniques and equipment, as well as describing the problems to friends and family or just coping. A few professionals, organizations and therapists also monitor and contribute to the list. This list is not for the canvassing of any particular religious or political ideals nor is it a forum to debate for/against abortion or euthanasia. In fact, the list is not for debate whatsoever. The sole purpose of this list is for support and information for ourselves and our kids.

My name is Randy, and I represent my son Sean, who is 6 years old and has severe cerebral palsy, spastic-quad, as a result of severe muconium aspiration. Sean is non-verbal and non-ambulatory. He is very aware though, has a great laugh, and a horrible grump which he has artfully mastered to effectively manipulate his daddy. The originator of this list is Ashley, who formed this list in January 1993 on behalf of her son Austin, who has Angleman Syndrome, on the basis of chromosomal testing.

Some of the kids represented on this list have more severe problems than ours, while others do not. Some are further ahead in capability and age, while others are not. But all of us and our kids have all benefited in the areas of support and knowledge thanks to the wonderful participants of this list. Please join us.

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Go to Fall 1998 Table of Contents.