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Deafblind

Assessment

Communication (including Calendars, Concepts and Routines)

Curricula

Early Intervention

Family Resources Including Parent Written Information

Hearing Related

IEP Preparation

Instructional Strategies and Modifications

General Information

Orientation and Mobility

Programming

Recreation and Leisure

Resources

Syndromes/Diseases

Tactile Related

Teaming

Transition/Future Planning

Training for Professionals

Key:
 article/periodical article or periodical    book book     document document     kit kit     video video     website website

Deafblind Resources
Item # Title Annotation Author Media Category
DB2 A Deafblindness Web Resource Page A collection of information including full text and links. Focuses on resources in the UK, Europe and the US. James Gallagher website General Info, Resources
DB3 A Lifetime of Patience A panel of parents discuss the challenges and joys of parenting a child with deafblindness D. Rudin & D. Wade video Family Resources
DB4 A Resource Manual for Understanding and Interacting with Infants, Toddlers and Preschool Age Children with Deaf-Blindness This manual contains topical information and activities for working with young children who are deafblind. L. Alsop, Ed. book Early Intervention, Instructional Strategies, Resources
DB5 Ain't Misbehavin': Strategies for Improving the Lives of Students are Deaf-Blind and Present Challenging Behaviors Practical strategies for proactive interactions which challenge relationships, designed for anyone who regularly interacts with a student who is deafblind, examines crucial links between behavior and the issues of communication, control, and quality of life, includes script. C. Axelrod, R. Condon, J. Durkel & D. Wiley video Communication, Family Resources, Instructinoal Strategies
DB6 Are You Listening? Auditory Issues for Children with Visual Impairments Overview of how our auditory system works, how we understand speech, the role of vision and speech in early development and strategies for developing listening skills. Moss, Kate article/periodical Hearing Related
DB7 Basic Skills for Community Living: A Curriculum for Students with Visual Impairments and Multiple Impairments Guide intended for students 6 to 22 who have vi combined with other disabilities such as hearing impairments and significant developmental delays. Levack, N., Hauser, S., Newton, L. & Stephenson, P. Eds. book Curricula
DB8 Calendars for Students with Multiple Impairments Including Deafblindness: A Systematic Process Supporting Communication, Time and Emotional Being This book is written for students who need help understanding, structuring and organizing their time and activities. R. Blaha book Communication
DB9 CHARGE Syndrome This article provides a list of the physical characteristics that lead to the diagnosis of CHARGE Syndrome. K. Moss document Syndromes/Diseases
DB10 Competencies for Paraprofessionals Working with Learners Who Are Deafblind in Early Intervention and Educational Settings A resource list and explanation of items one should understand when working in a paraprofessional role of educating students with deafblindness. M. Riggio & B. McLetchie book Training for Profs
DB12 Conversations Without Language: Building Quality Interactions with Children Who Are Deaf-Blind jj Questions and answers for parents of deafblind children. L. Hagood document Communication
DB13 Cornelia de Lange Syndrome (CDLS) Foundation, inc. This website has information in English, Spanish, and German. It includes a diagnosis protocol, a publications list, information about workshops and activities, links, and more. N/A website Syndromes/Diseases
DB14 Cornelia de Lange Syndrome (CDLS) On-line Support Group Several moms who met regularly and realized how wonderful it was to have a convenient way of communicating started this on-line support group. N/A website Syndromes/Diseases
DB15 Dancing Cheek to Cheek For parents of infant children with visual impairments, this book discusses how one can encourage play and language.   book Family Resources
DB16 DB-LINK The National Information Clearinghouse on Children Who are Deaf-Blind This website offers a wealth of information regarding deafblindness. It also provides a library and experts available to call for questions. N/A website Gen Info, Resources
DB17 DBMAT (Deaf-Blind Multihandicapped Association of Texas) Family and professional organization and advocate for all ages and cognitive levels of individuals who are deaf-blind and multihandicapped (including blind-multihandicapped and deaf-multihandicapped). N/A website Gen Info, Family Resources, Resources
DB18 Deafblind Children Home Page This page is set up as a resource for parents of deafblind children to locate information and chat with others in similar situations. N/A website Family Resources
DB19 Documenting Modifications in the IEP for the Student with Deaf-Blindness Two leading specialists in the area of deafblindness gives suggestions for documenting modifications for students with deafblindness. Areas included are altering assignments, adapting instruction and materials, managing behavior, and managing assistive technology. R. Blaha & K. Moss article/periodical IEP Prep
DB20 Downs Syndrome Educational Trust An excellent resource for educators and family members on Down Syndrome. N/A website Family Resources, Syndromes/Diseases
DB21 Early Identification of Hearing and Vision Loss Is Crucial to a Child's Development Discussion of how important it is to identify early signs of hearing and vision loss is given. A list of syndromes associated with hearing and vision losses is included. G. Newton & K. Moss document Early Intervention, Hearing Related, Syndromes
DB22 Education Protocol for Cornelia de Lange Syndrome Physical, environmental, instructional and social considerations are discussed in regards to educating the student with Cornelia de Lange Syndrome. M. Morse article/periodical Syndromes/Diseases
DB24 Family Village A website that brings together a wide range of information for families and individuals with disabilities. The library is a particularly good place to find information on specific syndromes and conditions. N/A website Family Resources, Syndromes/Diseases
DB25 Feelin' Groovy: Functional Tactual Skills The importance of functional tactual skills is discussed. M. Smith and R. Toy document Instructional Strategies, Tactual Related
DB26 Foundation Fighting Blindness The USA member of Retinal International has information about Retinitis Pigmentosa and other retinal diseases such as macular degeneration and other degenerative retinal diseases. N/A website Family Resources, Syndromes/Diseases
DB27 Games For People with Sensory Impairments This book provides facilitators with 70 games that sensory impaired people can play. L. Lieberman & J. Cowart book Rec/Leisure
DB28 Hand in Hand: Essentials of Communication and Orientation and Mobility for Your Students Who Are Deaf-Blind These materials are designed to provide basic knowledge and skills regarding the effects of deafblindness on instruction and interaction, strategies for instruction and interaction, ways to assist staff members and families working with students with deafblindness, detailed information on the development of communication and orientation and mobility skills, discussion of important concepts such as transdisciplinary teaming and ecological models, and lists of resources. K. M. Heubner, J. G. Prickett, T. R. Welch, E. Joffee, Eds. book Communication, Instructional Strategies, Orientation and Mobility
DB29 Hand-Over-Hand Guidance: What Lesson Do We Teach? The teaching philosophy of hand-over-hand instruction strategies is challenged and discussed. A. Story document Instructional Strategies
DB30 Helen Keller National Center, National Family Association for Deaf-Blind (NFADB) The mission is to enable each person who I deaf-blind to live and work in his or her community of choice. N/A website Family Resources, General Information
DB32 Identifying Vision and Hearing Problems in Infants with Disabilities A leading professional in the area of early intervention for visually impaired infants discusses areas that should be addressed when determining the need for early intervention. D. Chen article/periodical Early Intervention, Hearing Related
DB33 IEP Quality Indicators for Students with Deafblindness This document is designed to help educational teams develop appropriate IEPs for students with deafblindness. TSBVI Outreach document IEP Prep
DB34 The Importance of Orientation and Mobility Skills for Students Who Are Deafblind This article gives O&M instructional strategies, suggestions for families and tips for those working with interpreters. D. Gense & M. Gense article/periodical Orientation and Mobility
DB36 Independent Living: A Curriculum with Adaptations for Students with Visual Impairments (3 Volumes) Curriculum used for assessment, teaching and evaluating students in these areas: social skills, self care and leisure skills. It is designed for students from school age to adulthood who will live independently or with minimal assistance. R.. Loumiet and N. Levack book Curricula

Communication
DB37 Independent Living: Activity Routines A collection of routines for the following goals from the Independent Living Curriculum. TSBVI Residential Instructors book Communication
DB38 Information About Deafblind Census This site provides Information regarding the annual registration of children with documented and suspected deafblindness. (Texas only) N/A website Resources
DB39 Information About Usher Syndrome JIM - THIS ARTICLE IS FROM SEE/HEAR SPRING 96 This article gives a very detailed overview of Usher Syndrome, how to screen for the syndrome and how the diagnosis is made. B. Sims and K. Raistrick article/periodical Syndromes/Diseases
DB40 Innovative Program Design for Individuals with Dual Sensory Impairments Tips and ideas for program design for teaching students who are deafblind. L. Goetz, D. Guess, & K. Stremel-Campbell book Instructional Strategies
DB41 The INSITE Model: Resources for Family-Centered Intervention for Infants, Toddlers and Preschoolers Who Are Visually Impaired The INSITE model was developed to facilitate the provision of services to multihandicapped, sensory-impaired children in their homes. In this model, parents are the primary facilitators of development. Early intervention is stressed and home is considered the most appropriate setting intervention. Psychological and emotional support for family members is part of the intervention. Information about the unique problems and needs of children with multiple and sensory impairments and their families is provided. E. C. Morgan book Curricula, Early Intervention
DB42 The Intervener in Early Intervention and Educational Settings for Children and Youth With Deafblindness An informal resource for explaining the role of the intervener, defining terms used and answering common questions that arise regarding intervening on the part of a student with deafblindness. (PDF Dcocument L. Alsop, R. Blaha and E. Kloss document Early Intervention, Professional Training
DB43 Interveners for Students with Deafblindness in Texas These documents have been designed to help families and school districts in Texas to make decisions about using an intervener in the school setting for a student who is deafblind. L. Alsop, R. Blaha and E. Kloss article/periodical General Information, Professional Training

Training for Professionals
DB44 Jasmine's Page Parent of a child with congenital CMV started this homepage containing personal stories and links. N/A website Family Resources, Syndromes/Diseases
DB45 Retinitis Pigmentosa Homepage This personal website has a lot of information including: the inheritance of retinal degeneration, RP research, Usher Syndrome, RP FAQ sheet, Vitamin A treatment for RP, RP links, mailing lists, RP E-Pals, and RP Research. N/A website Syndromes/Diseases
DB46 Joseph's Coat: People in Trans-disciplinary Ways This well written article tells of the importance of teaming among different service providers to better help the education of the multi-impaired student. M. Smith document Teaming, Communication
DB47 Katlyn's Hope, Inc. A non-profit organization established to assist in the education of deaf-blind children from around the world. Of particular interest to many people are the materials dealing with fundraising and financial assistance for families with deaf-blind children. N/A website Family Resources
DB48 Let Me Check My Calendar An overview of anticipation and daily calendars used with students with deafblindness. R. Blaha & K. Moss article/periodical Communication
DB49 The Life Planning Workbook: A Hands-On Guide to Help Parents Provide for the Future Security and Happiness of Their Child With a Disability After Their Death A step by step guidebook for parents of children with disabilities to financially plan for the care of their child after their own death. L. Mark Russell & R. Grant book Transition

Family Resources
DB50 Listserv for Parents of Deafblind Children Parents of children with deafblindness may subscribe to this by sending the message: "subscribe message" to request@talklist.com. N/A Listserve Family Resources
DB51 Making the Most of Early Communication Demonstration video of intervention practices to use with multi-impaired infants and toddlers to enhance communication. P. H. Schacts & D. Chen video Communication
DB52 Monitor Checklist for Deafblindness Checklist to use while reviewing the eligibility folder (for DEC purposes) of a student who is deafblind. (Texas Only) Region 13 Education Service Center, Austin, Texas document Resources, Syndromes/Diseases
DB53 National Congenital CMV Registry This website offers information on congenital CMV and a parent-to-parent connection. N/A website Family Resources, Syndromes/Diseases
DB54 National Family Association for Deaf-Blind - NFADB Non-profit, volunteer-based family association. N/A website Family Resources
DB55 National Technical Assistance Consortium for Children and Young Adults Who Are Deaf-Blind (NTAC) NTAC provides assistance to families and agencies serving children and young adults who are deaf-blind. N/A website Family Resources
DB56 O&M ASSESSMENT and Developmental Workbook for Elementary School Age student with an Addendum for Hard of Hearing Students Protocol for use with students with deafblindness for the purpose of O&M assessment. P. Telleck document Orientation and Mobility
DB57 One Step at a Time: A Manual for Families of Children with Hearing and Vision Impairments This booklet offers practical information for helping children who are deafblind learn basic skills by sharing tried and true practices from families. T.A.S.H. book Family Resources
DB59 Perkins Activity and Resource Guide: A Handbook for Teachers and Parents of Students with Visual and Multiple Disabilities These books are a resource for a range of professional, parents and other caregivers who work with children with visual and multiple impairments. Areas of instruction include daily living skills, functional academics and orientation and mobility. C. Cuchman, K. Heydt. S. Edwards, M.J. Clark and M. Allon book Instructional Strategies

Curricula
DB60 Plan Ahead for Your Child's ARD Meeting Written by a family specialist, the author provides parents areas that should be considered and discussed before attending an ARD meeting for his or her child. Kate Moss document Family Resources, Transition
DB61 Planning for the Future: Providing a Meaningful Life for a Child With a Disability After Your Death Companion book to The Life Planning Workbook: A Hands-On Guide to Help Parents Provide for the Future Security and Happiness of Their Child With a Disability After Their Death. L. Mark Russell, A. Grant and S. Joseph book Transition

Family Resources

Transition/Future Planning
DB62 Retinal International Promoting the search for a treatment for Retinitis Pigmentosa (RP), Usher Syndrome, Macular Degeneration and allied retinal dystrophies. N/A website Syndromes/Diseases
DB63 Retinal Degeneration Discussion List (RPLIST) This list is an internet forum for discussion, questions and opinions related to retinal degeneration.
1. To subscribe to this list, send the following in a body of the e-mail message (leave the subject line blank) "Subscribe DBList first name, last name"

2. Send to listserv@sjuvm.stjohns.edu

N/A listserve Syndromes/Diseases
DB64 Routines: All Dressed Up and Somewhere to Go Introduction on how to use routines as a teaching strategy, useful for VI teachers when helping teams design activities Outreach Program of TSBVI video Communication
DB66 SEE/HEAR Publications and Archives Quarterly publication for instructors and parents of visually impaired, deafblind and multi-impaired children. It contain current and relevant information on various topics from home to school. N/A website Communication, Family Resources, Resources
DB69 Standard Tactile Symbol System: Graphic Language for Individuals Who Are Blind and Unable to Learn Braille Using a tactile system is explained for increasing students choice making, communication, expanding vocabulary and the understanding of concepts. Linda Hagood document Communication, Tactile Related
DB70 Suggestions for Modifying the Home Contains practical affordable and easily implemented suggestions for modifying the home for children with deafblindness and other types of impairments. F. Peck and D. Lolli book Family, Instructional Strategies
DB71 Supporting Young Adults Who Are Deaf-Blind in Their Communities: A Transition Planning Guide for Service Providers, Families, and Friends (access restricted to this page) The goal of this book is to guide service providers, family members, and friends in providing transition services to young adults who are deaf-blind. As such, it represents an effort to express the unique needs of the deafblind population and to integrate best practices into their transition services. J. M. Everson, Ed. book Transition, Transition/Future Planning
DB72 Syndromes Which Often Result in Combined Vision and Hearing Loss This article provides a list of syndromes and their characteristics that cause deafblindness. Kate Moss document Syndromes/Diseases
DB73 Talking the Language of the Hands to the Hands The author discusses the importance of the hands in development of students with deafblindness. Barbara Miles article/periodical Communication, Tactile Related
DB74 Tangible Symbol Systems: Symbolic Communication for Individuals with Multisensory Impairments This manual accompanies a videotape entitled, "Tangible Symbol Systems." It summarizes the techniques shown in the videotape, gives additional background and technical information, and supplies record keeping forms. Many individuals who are unable to communicate through conventional symbols such as speech or manual signs can learn to use tangible symbols, objects, or pictures that bear a concrete relationship to the visual or tactual properties of the entities that they represent. C. Rowland & P. Schweigert book and video Communication
DB75 TDPB Evaluation and the Young Child Who Is Deafblind: Assessing Orientation and Mobility Skills O&M assessment tool to use with children who are deafblind. Anthony, Tanni L. document Orientation and Mobility
DB76 Teaching Students with Visual and Multiple Impairments: A Resource Guide This book offers best practices for VI certified teachers serving students with visual and multiple impairments. M. Smith & N. Levack book Assessment, IEP Prep.
DB77 Texas Department of Assistive and Rehabilitative Services (formerly known as Texas Commision for the Blind) This website provides an overview of the services available from the TCB. Career counseling, vocational training and program overviews are found at this website. Specialized counselors and family caseworkers are available for deafblind individuals. N/A website Family Resources, Resources, Transition

Transition/Future Planning
DB78 Texas School for the Blind and Visually Impaired, Deafblind Outreach This department of TSBVI offers consultative services to students who are identified as deafblind being served through their local school district. (Texas only) N/A website Resources
DB79 Texas Deafblind Project This site provides a description of services provided through the project, includes names of persons directly involved with the implementation of the project. (Texas only) N/A website Resources
DB83 Twelve Things You Can Do to Plan for Your Child's Future Today This article was written for parents of children with severe impairments in order to help them prepare for their child's transition into adulthood. K. Moss article/periodical Family Resources, Transition

Transition/Future Planning
DB84 Usher's Syndrome Mailing List Usher-List is an internet forum for people with Usher's, parents, friends, spouses and service providers.
1. To subscribe to this electronic discussion group, via the web, go to www.Onelist.com.
2. To subscribe to this list via e-mail, send an e-mail message to: USHERS-SUBSCRIBE@onelist.com
3. If you have difficulty subscribing, contact the list-owners (Randall Pope and Mark Graffis) at Ushers-owner@onelist.com. 		N/A Listserve Syndromes/Diseases
DB85 The Unique Educational and Services Needs of Children with Deaf-Blindness A general overview of the unique needs for students of all ages who are deafblind. N/A article/periodical General Information
DB86 Child-Guided Strategies for Assessing Children Who Are Deaf-Blind or Have Multiple Disabilities This interactive CD provides video clips of children with which the participant can perform assessments on and plan out intervention strategies. It also includes a bibliography of Van Dijk's literature. C. Nelson & J. van Dijk CD-Rom Assessment
DB87 Where Do I Begin? This video provides professionals and parents strategies for communication development in young deafblind children. Order through:
wadba@nw.com.au 		N/A video Communication
DB88 Issues Regarding the Assessment of Vision Loss in Regard to Sign Language and Fingerspelling for the Student with Deaf-Blindness The authors of this article discuss areas of consideration before, during and after performing a functional vision assessment for a student with deafblindness. Modifications and adaptations are also discussed. R. Blaha & B. Carlson article/periodical Assessment
DB89 Questions to Answer in Preparation of Your Child's ITP Meeting The author, a deafblind specialist, gives 8 questions for a family to discuss and answer in order to better prepare for their child's ITP meeting. David Wiley article/periodical Family Resources

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Created by Julie Prause. Please send comments, suggestions, or updates to Julie Prause or Jim Allan

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Last Updated: November 12, 2007