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Aiden magnifierSM

May 4, 2018

at Texas School for the Blind & Visually Impaired

James C. Durkel Conference Center

Austin, Texas

“Makes me unique” were the three words on the poster created by one student with albinism who participated in NOAH’s “My Three Words” YouTube video. Feeling good about yourself when you stand out as unique can be a tricky path. Students with albinism have unique needs in addition to having low vision and providing service for this student population is the focus of our 2018 Low Vision Conference. Program highlights include an interactive session on genetics of albinism with Dr. Murray Brilliant, a renowned researcher who has dedicated his professional work to this topic and a session focusing on psychosocial impact with Ms. Kelsey Thompson, a licensed clinical professional counselor and a certified rehabilitation counselor.

Special Pre-Conference Event

This year there will be a special pre-conference event on Thursday, May 3, from 6:30-8:00 PM at the James C. Durkel Conference Center on the TSBVI campus.  Deciding how to respond when being VI makes you stand out; this is an interactive session to talk about it. Kelsey Thompson (Vocational rehab counselor in Chicago, a presenter for the Low Vision Conference, NOAH Insight contributor, a person with albinism) will lead this discussion. Students, parents, & professionals are welcome to join in this discussion.

Registration

Early Bird Registration begins February 26, 2018 and continues through April 22, 2018 for the discounted price of $30 for all participants.  After April 22nd the fee rises to $50.  Registration online is through our trusted partner, ESC Works.  You may pay immediately with a credit card or you can registered now and pay later to get the discount fee if you pay with a check or purchase order.  Send payment to:

Cashier

c/o TSBVI Business Office

1100 W. 45th Street

Austin, TX 78756

Register Now!

Cancellation

You may cancel your registration up until May 2, 2018 without a penalty.  Beginning May 2nd you may be subject to a $25 cancellation fee.  Please contact Randall McAlister right away at  if you need to cancel your registration.


Tentative AgendaHope kitchenSM

8:00-8:45 AM: Sign-in and Coffee

8:45-9:30 AM:  Welcome & Panel of persons with albinism

9:45-10:45 AM Genetics & the Eye (Dr. Murray Brilliant)

11:00-12:00 PM: Ages and Stages (Chrissy Cowan & Marjie Wood)

12-1:30 PM Exhibit Fair

1:30-2:45 PM Social and Emotional Aspects of Albinism (Kelsey Thompson)

2:45-3:00 PM Video Tapestry

3:00 PM Closing

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Objectives:

Participants will:

  1. Summarize the different patterns of inheritance and the genes associated with the most common forms of albinism;
  2. Identify unique needs of students with albinism and intervention strategies to support them;
  3. Describe the impact on social and emotional growth of having albinism, a condition that includes visual impairment along with differences in appearance and social stigma.

Stipends for Adult Family Members

Limited stipends are available for adult family members of students with albinism which can be used to cover the cost of registration, hotel, transportation, meals and / or child care as needed.  Please contact your TWC or HHSC Caseworker about their ability to help you with the costs associated with this workshop before requesting this stipend.  You may make a request when you register and someone from our staff will contact you to set up the assistance you need. If you have questions about this assistance please contact Rachel Simpson at or at 512-206-9418.

Continuing Education Credits

This workshop, like all of TSBVI Outreach workshops, has been approved for both SBEC and ACVREP continuing education credits.  The number of credits available for this workshop is 5.75.

Lodging

There are a variety of hotels located near by TSBVI Campus.  Please make your own reservations unless you are a family member requesting assistance with the hotel.  There are a number of hotels in the area which typically offer a state rate.