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There are few other resources as valuable to family members of children with visual impairments and deafblindness as state and national family organizations.

State Organizations (Texas)
National Organizations (United States)

 State Level

DBMAT

Deaf-Blind Multihandicapped Association of Texas - The mission of DBMAT is to promote and improve the quality of life for all Texans who are deaf-blind multi-handicapped, deaf multi-handicapped, and blind multi-handicapped.  Listen to a message from the members..

TAPVI

Texas Association of Parents of Children with Visual Impairments - The Texas Chapter of the NAPVI supports parents of children with visual impairments. - Listen to a message from the members..

TXChargers

Texas Chargers - Texas Chargers, Inc. encourages, educates, and enriches individuals and families living with CHARGE Syndrome.   - Listen to a message from the members..

TXHandVoices

Texas Hands and Voices - Texas Hands & Voices (TX H&V) offers support, information and resources in an unbiased manner to families with children who are deaf and hard of hearing.  Our outreach activities, parent/professional/community collaboration, and advocacy efforts are focused on enabling Deaf and Hard-of-Hearing children to reach their highest potential.  - Listen to a message from their members.

TXPBC

Texas Parents of Blind Children - Texas Parents of Blind Children (TPOBC) is the state chapter of the National Organization of Parents of Blind Children (NOPBC), a division of the NFB of Texas, a national membership organization of parents and friends of blind children. Our state chapter was formed at the NFB of Texas State Convention in 2006 in order to reach out to parents of blind children and provide vital support, encouragement, and information. - Listen to a message from the members..

TxP2P

Texas Parent to Parent (TxP2P) is committed to improving the lives of Texas children who have disabilities, chronic illness, and/or special health care needs. TxP2P empowers families to be strong advocates through parent-to-parent support, resource referral, and education. 

ARC

The ARC of Texas - The Arc of Texas creates opportunities for all people with intellectual and developmental disabilities to actively participate in their communities and make the choices that affect their lives in a positive manner.

TxProject1st

Texas Project FIRST, created by parents, for parents...this web site is a project of the Texas Education Agency and is committed to providing accurate and consistent information to parents & families of students with disabilities

Family to Family Network

The mission of Family to Family Network is to help families of children with disabilities by providing information, training, referral and support 13150 FM 529, Suite 106 Houston, TX 77041 Phone:  713-466-6304 Email:  Website:  www.familytofamilynetwork.org/ Texas Project First Website:  http://texasprojectfirst.org/index.html    

 National Level

CdLS

 

 

 

The Cornelia de Lange Syndrome (CdLS) Foundation is a family support organization that exists to ensure early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS, and others with similar characteristics, make informed decisions throughout their lives.

The CdLS Foundation is a national non-profit organization that has served people with CdLS and their families since 1981. The Foundation’s mission is reflected in its slogan: Reaching Out, Providing Help, and Giving Hope.

The Foundation is the only organization dedicated to CdLS in the nation. It distributes a number of publications to families and professionals caring for children with CdLS, and hosts meetings and conferences where researchers and families can meet to exchange information. The Foundation also acts as a facilitator between families and professionals, utilizing a team of professionals who lend their expertise to those caring for a child with CdLS.

NAPVIJewishGuild

National Association of Parents of Children with Visual Impairments - NAPVI and the American Foundation for the Blind (AFB) are so pleased to bring you our web site, www.FamilyConnect.org, an online, multimedia community for parents and guardians of children with visual impairments. FamilyConnect gives parents, grandparents and other caretakers a place to find comprehensive resources and support 24 hours a day, with access to message boards where they can talk to other parents, compelling videos featuring real-life families, parenting articles, a mom-authored blog, and links to local resources. The site also features sections dedicated to multiple disabilities, technology, education, and every age group from infants to teens. Visitors to www.FamilyConnect.org can also create a personal profile and receive information on news and events based on their child's age, eye condition, and location.  Listen to a message from NAPVI.

NFADB

National Family Association for Deaf-Blind - NFADB exists to empower the voices of families of individuals who are deaf-blind and to advocate for their unique needs.  NFADB Videos on Deaf-Blindness (English long and short versions), Spanish (NEW)