Statewide, National and International Deafblind Resources

Statewide Resources

Texas Interagency Task Force on Deafblindness

Other State Deafblind Projects

National Deafblind Resources

• National Family Association for Deaf-Blind (NFADB)
• DB-Link - The National Information Clearinghouse on Children Who Are Deaf-Blind
• The National Consortium on Deaf-Blindness
• NTAC - The National Technical Assistance Consortium for Children and Young Adults Who Are Deaf-Blind
• Helen Keller National Center
• Hilton-Perkins Program

International Resources

• Deafblind International
• Sense Internacional (Latinoamerica)

General Resources

• Texas Deafblind Project
• CHARGE Syndrome
  • CHARGE Syndrome Foundation Home Page - International organization of parents and medical experts.
  • Mighty Max Update: MIGHTY MAX is a little boy born in 2005 and diagnosed with CHARGE Syndrome, he has faced many life threatening conditions and spent the first six months at Children's Hospital in Seattle. This is a blog written by his mother, but from the point of view of Max.
  • CHARGE Family Support Group - Site for parents, caregivers and professionals involved in the lives of people with CHARGE in Britain. Numerous resources, including links and articles.
• Children Who Are Deafblind With Cochlear Implants
• Usher's Syndrome
  • National Usher Study and Treatment Center
• Cornelia deLange Syndrome Foundation
• Down's Syndrome
  • Down's Syndrome Information Network
  • Hearing and Vision Loss Associated with Down Syndrome
• Rubella
• Courses And Distant Learning On Deadfblindness Through Institutes Of Higher Education

Attachments:

Collaboration A Publication of the Texas Interagency Task Force on Deafblindness

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