Statewide, National and International Deafblind Resources

Texas Statewide Deafblind Resources

• Texas Deafblind Medicaid Waiver
• DBMAT Regional Coordinators
• Region 3 Deafblind Specialist
• Texas Department of Assistive and Rehabilitative Services (formerly known as Texas Commision for the Blind) Deafblind Services
  Interagency Task Force for Future Services to Deaf-Blind
  Texas Department of Assistive and Rehabilitative Services (formerly known as Texas Commision for the Blind)
  4800 North Lamar, Suite 110
  Austin, TX 78756 Randy Feille - phone: (512) 377-0575, FAX: (512) 377-0468, email: Randy.Feille@dars.state.tx.us 
  Patricia McCallum phone: (972) 987-1904, FAX: (972) 287-1904, email: pajomac@aol.com
• Helen Keller National Center Southwest Region [HKNC South Central Region]
  4230 LBJ Freeway, LB #31, Suite 340
  Dallas, TX 75244 C.C. Davis
  Regional Representative
  (972) 490-9677
  TTY:(972) 490-9677
  FAX:(972) 490-6042
  email: ccfutbol@aol.com
• NAPVI Texas Representative -  Region 5 (KS, OK, NM, TX)
  Alison Rickerl
  Home: 1-281-286-9820
  Work: 1-281-483-0371
  email: arickerl@ems.jsc.nasa.gov 
• Deaf-Blind Multiple Disabilities Program
  Texas Department of Human Services
  P.O. Box 149030
  Mail Code W-521
  Austin, TX 78714-9030 Steve Schoen
  Program Specialist
  (512)-438-2622
  FAX:(512) 438-5135
  E-mail: steve.schoen@dhs.state.tx.us 

Other State Deafblind Projects

National Deafblind Resources

• National Family Association for Deaf-Blind (NFADB)
• DB-Link - The National Information Clearinghouse on Children Who Are Deaf-Blind
• The National Consortium on Deaf-Blindness
• NTAC - The National Technical Assistance Consortium for Children and Young Adults Who Are Deaf-Blind 
• Helen Keller National Center
• Hilton-Perkins Program

International Resources

• Deafblind International
• Sense Internacional (Latinoamerica)

General Resources

• SUMMER CAMPS
• CHARGE Syndrome
  • CHARGE Syndrome Foundation Home Page - International organization of parents and medical experts.
  • Minnow's CHARGE WebPage - A web site designed by a parent and contains CHARGE links as well as good general information for families, including links to the CHARGE Chatroom and the CHARGE Listserv.
  • CHARGE Family Support Group   - Site for parents, caregivers and professionals involved in the lives of people with CHARGE in Britain. Numerous resources, including links and articles.
• Usher's Syndrome
  • The Boys Town Research Registry for Hereditary Hearing Loss
• Cornelia deLange
• Down's Syndrome
  • Down's Syndrome Information Network
  • Hearing and Vision Loss Associated with Down Syndrome
• Rubella
• Courses And Distant Learning On Deadfblindness Through Institutes Of Higher Education